Optimizing health care for adults with spina bifida.
نویسنده
چکیده
Survival into adulthood for individuals with spina bifida has significantly improved over the last 40 years with the majority of patients now living as adults. Despite this growing population of adult patients who have increased medical needs compared to the general population, including spina bifida (SB)-specific care, age-related secondary disabilities, and general adult medical needs, there is little published information about the natural history of SB in adulthood. There are few published studies of medical conditions, interventions, or long-term complications in this population. This article will provide a review of the medical issues of adults with SB, highlighting areas that are different than pediatric care, and areas of needed research.
منابع مشابه
Development of health support services for adults with spina bifida.
PURPOSE To describe, within a state-wide transition framework, the pathway to improved health support services for adults with spina bifida. Our aim was to achieve adult care that addressed adult health issues, despite significant budgetary restraints and competition for the public health dollar. METHOD A pilot clinical service project in one of the Area Health Services and a transition workf...
متن کاملTransition in young adults with spina bifida: a qualitative study.
BACKGROUND Adolescents and young adults with spina bifida are an at-risk population because of the complexity of their condition, developmental stage and social challenges. The purpose of this qualitative study was to examine the transition to adulthood in young adults with spina bifida and to explore condition-related needs and life skills required during the transition process. METHODS This...
متن کاملOptimizing health care for children with spina bifida.
The health care needs of children with spina bifida are complex. They need specialists, generalists, and an integrated system to deliver this complex care and to align and inform all the providers. Most research in spina bifida has been focused on narrow medical outcomes; it has been noncollaborative, based on small samples of convenience, with no comparison groups, and without consistent stand...
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متن کاملInpatient health care use among adult survivors of chronic childhood illnesses in the United States.
OBJECTIVES To describe the inpatient length of stay and related charges for adults in the United States with childhood-onset chronic disease and to examine patterns with respect to different hospital settings. DESIGN We analyzed data from the 2002 Nationwide Inpatient Sample, a nationally representative data set of hospital discharges. We performed a case-mix-adjusted, sample-weighted regress...
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ورودعنوان ژورنال:
- Developmental disabilities research reviews
دوره 16 1 شماره
صفحات -
تاریخ انتشار 2010